On the 16th we finally drove the 2 hours north to Oregon Health and Sciences University for my appointment with Dr Madison. The drive up was uneventful but we were both groggy from getting up early after a night of tense sleep. Wow OHSU is a labyrinth!! We got lost a bunch but had left plenty of time so made it to my appointment in plenty of time.
After checking in and doing the normal height, weight, blood pressure stuff the Dr came in to see me. Unfortunately he didn't receive my chart, MRI, labs or anything with my referral :( Can't even comment on that I am so angry. Luckily I had copies of my labs and the reports from MRI and Thyroid scan so the appointment wasn't a total loss.
After a lengthy question and answer session and a physical exam of my neck and shoulders, I was sent up to the lab. Seeing the huge strip of labels about made me cry... but 16 tubes of blood later I didn't feel TOO bad so we wandered around campus trying to find where we parked and to start our way to IKEA for treats :D
Still 2 days later I am feeling woozy and weak, eating as much iron rich food and protein along with lots of water to try and help my body rebuild the blood. I may have to have another round of labs like this, plus another tube if he wants to run the DNA sequence to look for a specific genetic 'break'.
Plan is to wait on labs to return in 2-3 weeks for some of them, he will do more research and give me a call to make a plan when he knows more. Seems like we are back to the beginning on this, but I feel better about the options.